Global - New research confirms what many of us already know: lived experience expertise makes digital mental health too…
Global - New research confirms what many of us already know: lived experience expertise makes digital mental health tools better. A scoping review just published in Internet Interventions analyzed 29 studies on how people with lived experience of mental health conditions are involved in building di…
Global - New research confirms what many of us already know: lived experience expertise makes digital mental health tools better. A scoping review just published in Internet Interventions analyzed 29 studies on how people with lived experience of mental health conditions are involved in building digital mental health interventions (apps, platforms, programs). 🧠 Key findings worth sitting with ➡️ What's working People with lived experience are increasingly being involved, and when they are, developers report better relevance, credibility, and inclusivity of the tools being built. Real people flagging real barriers. Simpler language. Crisis features that actually reflect how people experience crisis. ➡️ What's still falling short Most engagement stays at the "consultation" level - focus groups, interviews, one-off feedback sessions. Genuine co-design, where lived experience holds real decision-making power, remains rare. ➡️ The gap nobody's closing yet No study directly compared outcomes of tools built with versus without lived experience input. We believe it matters. But we can't yet prove it rigorously. This is exactly the gap the Experience Hub exists to close, moving from tokenistic consultation toward genuine partnership, and building the evidence that doing so leads to better outcomes. If you're building digital mental health tools and want to do this right, let's talk.